
Marie Bakitas, DNSc
Funded Projects
Comparing Two Ways to Offer Palliative Care to Improve Quality of Life for Patients with End Stage Liver Disease (PCORI Tele-Health)
Patient-Centered Outcomes Research Institute
Co-I: Marie Bakitas, DNSc, NP-C, FAAN
Comparative effectiveness of 2 possible palliative care (PC) models for patients with end-stage liver disease in improving quality of life (QoL) from baseline to 4 months as assessed using the Functional Assessment of Cancer Therapy-Hepatobiliary (FACT-HEP). A sub-study will conduct qualitative interviews with study participants (i.e. patients, caregivers, and clinicians) to determine study impact on practice and patient outcomes.
Early Palliative Care in Older Adults with COPD and their Family Caregivers
Paul B. Beeson Emerging Leaders Career Development Award in Aging (K76)
National Institute on Aging, the American Federation of Aging Research
PI: Anand Sathyan Iyer, MD, MSPH
Co-Mentor: Marie Bakitas, DNSc, NP-C, FAAN
This award supports early-stage physician and other health professional investigators with a commitment to aging and/or aging-related diseases to advance research and leadership skills in their specialty and in the broader field of aging and geriatrics research. Specifically, this award would support an RCT of geriatric-palliative care following hospitalization for severe exacerbation of COPD.
lmplementing Palliative Care: Learning Collaborative vs. Technical Assistance
Dartmouth-Hitchcock Clinic
Co-investigators: Marie Bakitas, DNSc, NP-C, FAAN, Richard Taylor, DNP, CRNP, APN-BC, J. Nicholas Dionne-Odom, PhD, APRN, ACHPN, FPCN, Maria Pisu, PhD
Compare the effectiveness of virtual learning collaborative (VLC) vs. Technical assistance (TA) on ENABLE program uptake as measured by the proportion of patients at participating NCORP practices who complete the ENABLE program. The long-term goal of this study is two-fold: 1) to generate knowledge about methods to improve the adoption, adaptation, integration, and scalability of evidence-based practices, and 2) to improve the integration of the evidence-based ENABLE EPC program in oncology practices to reduce disparities for patients with advanced cancer who have low access to EPC.

Rebecca Edwards, PhD
Funded Projects
Assessing Cancer Patients Palliative Care Needs in Jamaica
American Cancer Society
Site PI: Rebecca Edwards, DNP, ARNP, Marie Bakitas, DNSc, NP-C, FAAN
The proposed study is an important step in the process of fully integrating palliative care services across Jamaica’s health institutions and centers. The overarching goal of the study is to determine best avenues to train a multidisciplinary palliative care workforce in Jamaica in order to provide care that will improve quality of life and reduce suffering for the many Jamaicans impacted by late-stage serious illnesses. This study will also foster the ongoing formal relationship between the Schools of Nursing, University of Alabama at Birmingham and the University of the West Indies Mona campus.

Ronit Elk, PhD
Funded Projects
A Community-Developed, Culturally-Based PC Tele-Consult Program for African American and White Rural Southern Elders with a Life-limiting Illness
National Institute of Nursing Research/NIH/DHHS
Co-PIs: Ronit Elk, PhD & Marie Bakitas, DNSc, NP-C, FAAN
This study compares a robust, culturally-based Palliative Care Tele-consult program to usual hospital care to determine whether a culturally-based Palliative Care Tele-consult program leads to lower symptom burden (primary aim) and higher patient and caregiver quality of life, care satisfaction, and lower caregiver burden at Day 7 post-consultation, and lower resource use 30-days post-discharge (secondary aim) in hospitalized AA and W older adults with a life-limiting illness.

Shena Gazaway, BSN, MSN, Ph.D.
Funded Projects
Determining the Influence of Cultural Values of Black, Rural Caregivers on Decision-making for Seriously ill Loved Ones
National Institute of Nursing Research/NIH/DHHS
PI: Shena Gazaway, BSN, MSN, Ph.D.
The goals of this supplement are to explore the cultural values, beliefs and attitudes of rural African American family caregiver participants in the parent randomized trial about serious illness, consideration of treatment options, and determine how these factors influence the decision-making goals of care for their loved one.

Erin Currie, MSN, PhD, RN, CPLC
Funded Projects
Do Health Disparities in the Deep South Impact Neonatal Palliative Care? Parents Perspectives
National Palliative Care Research Center
PI: Erin Currie, MSN, PhD, RN, CPLC
This is a 2-year, multi-site (Children’s of Alabama, Birmingham; Batson Children’s Hospital, Jackson, MS; Children’s Hospital of New Orleans, New Orleans, LA) focused on pediatric palliative care (PPC) received in the neonatal intensive care unit (NICU) in the Deep South. The aim of this study is to (a) describe sociodemographic/racial differences in NICU patients’/parents’ PPC outcomes and (b) explore bereaved parent preferences and needs related to PPC during and following their infant’s hospitalization in the NICU.

Anand Sathyan Iyer, MD, MSPH
Funded Projects
Early Palliative Care in Older Adults with COPD and their Family Caregivers
Paul B. Beeson Emerging Leaders Career Development Award in Aging (K76)
National Institute on Aging, the American Federation of Aging Research
PI: Anand Sathyan Iyer, MD, MSPH
Co-Mentor: Marie Bakitas, DNSc, NP-C, FAAN
This award supports early-stage physician and other health professional investigators with a commitment to aging and/or aging-related diseases to advance research and leadership skills in their specialty and in the broader field of aging and geriatrics research. Specifically, this award would support an RCT of geriatric-palliative care following hospitalization for severe exacerbation of COPD.

Lisa Zubkoff, PhD
Funded Projects
lmplementing Palliative Care: Learning Collaborative vs. Technical Assistance
Dartmouth-Hitchcock Clinic
Co-investigators: Marie Bakitas, DNSc, NP-C, FAAN, Richard Taylor, DNP, CRNP, APN-BC, J. Nicholas Dionne-Odom, PhD, APRN, ACHPN, FPCN, Maria Pisu, PhD
Compare the effectiveness of virtual learning collaborative (VLC) vs. Technical assistance (TA) on ENABLE program uptake as measured by the proportion of patients at participating NCORP practices who complete the ENABLE program. The long-term goal of this study is two-fold: 1) to generate knowledge about methods to improve the adoption, adaptation, integration, and scalability of evidence-based practices, and 2) to improve the integration of the evidence-based ENABLE EPC program in oncology practices to reduce disparities for patients with advanced cancer who have low access to EPC.